Nathan had a boat load of blood taken today for a whole slew of tests. We were sent to one lab where I personally watched 2 phlebotomist's eyes pop out of their heads and roll around on the floor when they saw all the tests the neurologist wanted performed and how much blood they were going to have to take from this 9 pound sack of potatoes. They immediately sent me over to a different lab located beside the biggest hospital I have ever been to where they obviously had phlebotomists who had a very good grip on their eye balls.
Our Pulmonologist called this morning to tell us that the geneticist didn't want to see us unless the neurologist later decided we needed to get some genetic testing. The neurologist does want to see Nathan...and obviously see LOTS of his blood results. Unfortunately, our Pulmonologist's secretary called me later today to tell me that the Neurology department is currently setting up appointments for new patients in the not-so-close month of SEPTEMBER! Dude, seriously? She said not to be alarmed when they set up that appt for us because "our people will call their people and get something a wholeheckofalot sooner for us". She didn't really say it like that, but I thought quotations there would make that sentence easier to read.
She also contacted Physical Therapy to put us on their list...though, I've heard that it's a pretty penny of a wait as well. Don't think that I haven't wondered if I could just show up to these places and show them how stinkin' adorable my son is in hopes that we could cut to the front of the line. It could so totally work too. I mean, he is the cutest thing since sliced bread.
All jokes aside, the emotions of all of this pretty much run the gamut. Just in one day, I have gone from feeling incredibly impatient because we can't get in and find out what is wrong with Nate TODAY...to being completely frightened that any of the tests they ran today will come back abnormal. In one minute, I want so bad to know what is wrong with our son so we can know what to expect for his and our future. And the very next minute, I don't want to know, but I want to hold him and enjoy him and look at him like everything is perfectly okay. Currently, I'm nervous. I feel like I am about to go to the dentist or I have just gotten the talk of "wait until your father comes home". It feels like someone is sitting right on my chest and I can hardly get a deep breath. I don't want any more bad news, but I am prepping myself for anything.
Nathan was a trooper today. He gets so ticked off each time they put a tourniquet on his arm, but he stops screaming the instant they take it off. He's been through so much in his short little life. He's already so brave and strong.