Tuesday, April 15, 2008

Such a great morning!

More therapy talk...but mostly because it was such a great session that just uplifted our spirits! Nathan's therapists did some reading about therapies for breathing problems and talked with another therapist who had just come back from a respiratory therapy conference, so she had a couple of exercises to try on him during our session this morning.

We unlocked another piece to this strange little puzzle named Nathan: his ribs are way too high and positioned too close together, and his diaphragm is not aiding in his breathing at all...his stomach muscles are doing all of the work. The therapist showed me an exercise to start doing with him that involves sticking my finger between each individual rib and tugging down to help stretch out each muscle connecting the ribs. Hopefully this will gradually loosen up those muscles enough to pull his ribs down to a more normal level in his chest.

I was also shown an exercise that makes his diaphragm aid in his breathing instead of his stomach. With both hands on his chest, I put a little pressure on him and tug down on his ribs. He breathes really really fast at first, but after a few seconds, he takes a few deep and slower breaths like he is supposed to be doing. It is simply amazing to see the difference in his breathing during this exercise. Unfortunately, it tires him out pretty fast, so we can only do a few of these at a time, but we hope that he will improve gradually over time. We are introducing the tape therapy next week that will help train his diaphragm to start working correctly, so I look forward to seeing the improvement that it will hopefully make with his breathing.

Now, the question is whether all of his problems are from an anatomical defect (his ribs and chest muscles not developing right) that can hopefully be trained to respond correctly or whether it is something neurological or physiological that has created his chest muscles/ribs to respond this way and prevent him from breathing correctly. Hopefully this is something that our neurologist can figure out.

The other great news is that Nate's therapist finished her evaluation on him today and came to the conclusion that while he may be a little on the lower side of "muscle tone", she does not think that it will effect him developmentally. He has improved drastically in strength over the past week especially, and he continues to grow stronger every day. We will continue to watch him and work with him to make sure that he is hitting his milestones, but she thinks that he should develop just fine. What a relief!

So, this is some of the best news we have received in quite a while, and I am on Cloud 9! I have been praying for the little man to get stronger and surpass the diagnosis of hypotonia, and it looks like that prayer has been answered. I am so thankful! So, clearly I had to share with everyone about our wonderful morning.

I had the wonderful privilege to meet and photograph a precious little family this weekend and wanted to share a couple of the pictures from that shoot. So, yes, I am back to doing photo shoots, but very sparingly. Obviously, it takes longer to edit pictures when nursing a little one every couple of hours, and I usually do all of my editing at night but sleep is a very dear thing when I can get it. Due to this, I will more than likely limit the sessions to 2 a month for the time being. Please email or call if you are interested.

It was so great to get out of the house for a couple of hours and have fun taking pictures of someone other than my own kiddos. And these two were such a joy and the sweetest little things!! Thanks for the opportunity. It was so great to meet you all!!

**More pictures on the photography blog.**


Dana on April 15, 2008 at 10:56 AM said...

Those pictures are precious!! (btw, I so need a photo session of my family from you...how much is travel time??)

kathy said...

We are so pleased to hear the great news about Nate. We will continue to prayer for him and your sweet family.
We Love ya'll

Laura on April 15, 2008 at 11:46 AM said...

Wow, Amber! I'm so glad for your news! We'll keep praying for that handsome little man of yours! Beautiful pics, too!

oh amanda on April 15, 2008 at 12:29 PM said...

I love hearing good news about Nate! And I'm going to expect it every time!! ;) Always praying for him and you !

Tara on April 15, 2008 at 2:04 PM said...

I bet you are on cloud 9 with that great report! Im so thankful that you have such a great therapist that dug a little deeper, to give you some answers! God is still showing his presence in little Nathan's life daily!

Cute Pictures!

su on April 15, 2008 at 2:48 PM said...

Amber, I want to tell you that reading your post blesses me everyday. Your unselfish care, concern, competence, strength, joy, and unconditional love for your children defines "Mother" , and it all comes through in your beautiful journal. How blessed your children and husband are!

momof2princesses on April 15, 2008 at 5:50 PM said...

YAY for more good news! I'm glad you have more techniquest to work with. And I'm glad he's improving every day.

The photos are beautiful, as always!

Anonymous said...

Praise the Lord for the great news! I am so very glad and very thankful! I can only imagine what you must feel. I truly don't understand, but I know as a Mama you and Brother Jay must be so...I can't even think of any words that could describe what I want to say. Only...Praise the Lord and Glory hallelujah or as Berb would say Glory lujahhalle!
Love so much,
Sister Dina

Anonymous said...

Dar Dar said....
DIDO on everything Dina wrote. Missed you guys on Sunday. Nate is so precious, just like the rest of his family. Love Ya'll So Much!

Emily on April 16, 2008 at 2:33 PM said...

Ahh, great news!! That would give such relief. Of course, he will still be in prayer.

Michelle on April 17, 2008 at 12:30 AM said...

so glad to hear his therapy sessions are going so well and his PT seems to be really on top of things!

Tammy on April 21, 2008 at 8:14 AM said...

Praise the Lord for this latest wonderful news!! The Lord is merciful in hearing our pleas for Nathan's current and future well-being and health. He is so Good and Faithful.
Bless you all.

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