Tuesday, July 8, 2008

What's one more specialty doctor anyway?


Nate's apnea monitor and I are about to take a little walk to the woods, and one of us ain't comin' back. Turns out that Mr. Nateman likes to keep his heart rate on the high side...especially in the middle of the night. The past 4 nights, a beeping alarm so loud that it makes fire alarms cower and hide with their tails between their legs has piped into our room via the baby monitor and catapulted our exhausted bodunkadunks into panic mode to get Nate's heart rate back down before the girls wake up. Abby woke up during the first round of seemingly unending beeps during the 3:00am hour last night. That one lasted for a full 15 minutes. When the second round started at 5:30am (and lasted until 6:00am), we were smart enough to throw the machine under 3 pillows and a blanket and then lean against it. Dude, I'm telling ya...IT'S LOUD! Emma didn't wake up for either middle-of-the-night episodes, and I fear for her safety lest a fire break out someday.Unfortunately, Nathan stayed asleep during the majority of these episodes also, which isn't technically a good thing. You see, the annoying little machine has been going off A LOT each day due to too high of a heart rate. For the most part, it goes off if he cries, or fusses a little, or sometimes when he is eating...all somewhat okay things to be doing to cause an elevated heart rate. Sleeping should have the opposite effect.

After our home health nurse made an unplanned visit today due to Nathan's apnea monitor needing to be downloaded prematurely because it was full, she called the Pulmonologist with the findings. He has to review all of the readings tomorrow morning, but from what he said on the phone, it looks like he will be referring us to a Pediatric Cardiologist.

As a mother, this is a triumph. I have mentioned having his heart rechecked a few times over the past month...breathing difficulties are usually tied together with heart issues...but my wonderings have been dismissed. I have also wondered if his "dusky" and "blue" episodes are related to his heart instead of his breathing, and it looks like this could very well be the case. Score one for a mother's intuition.

Other than getting practically no sleep over the past couple of nights, we are doing well. Nate had a wonderful therapy session today, and I have some new, fun exercises to add to our daily home therapy sessions. We also found out today that he will probably be starting aquatic therapy in September when our therapy place gets their pool. Awesome! He's going to love it!

8 comments:

oh amanda on July 8, 2008 at 7:34 PM said...

So, is this all good news? It sounds like it! I'm so glad they are giving you therapy to do...it seems fixable, you know?!

Praying for wisdom for you guys and the doctors. And for healing for Nate!

Amanda on July 8, 2008 at 8:10 PM said...

Oh you poor things! I can only imagine what loud beepings in the middle of the night does to your heart rates!

Hope everything checks out okay with little mans heart, we will be praying for that.

Christine on July 8, 2008 at 8:35 PM said...

oh my gosh, my heart is racing just thinking about the noise in the middle of the night. I hope that you are able to get some dang answers and AMEN for mother's intuition!!!

Mom of TWO Princesses on July 8, 2008 at 8:59 PM said...

I don't know why doctors fail to listen to us, Mom's! I'm praying the cardiologist will find an answer.

Yay for the aquatic therapy!

Toni on July 8, 2008 at 9:05 PM said...

I pray the cardiologist has THE answer!! I can't imagine what its like when that Apnea monitor goes off.

Your all in my thoughts and prayers!

Dani on July 8, 2008 at 9:15 PM said...

Therapy in the pool, awesome, sounds like play time for just the two of you!

The Princess on July 9, 2008 at 8:30 PM said...

Speaking of loud noises and Emma not hearing them...Micah and Daddy had an episode this past year when there were beans that ran out of water on the stove. Micah was already asleep in the bed, and Daddy was outside with Buster. Daddy saw the firetruck pull up and had no clue as to why...Micah did not wake up until the firemen came to check on him to make sure he was okay...and the smoke detector and alarm (which also sounds) are in the hallway inches from his bedroom door still going off! CRAZINESS! Very scary at the same time too!

Missy @ It's Almost Naptime on July 11, 2008 at 1:40 AM said...

Praying.

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