Friday, August 8, 2008

Mucho medical jargon

So, Nathan's blood results were still abnormal. Our Pulmonologist called this morning after he had consulted with a hematologist/oncologist about the blood test. Essentially, his blood tests have always been abnormal (we all know that now, right?), but they haven't gotten any worst. They haven't really gotten any better, but not any worst either. So we are going to sit and wait right now until he has another "weak" episode in a few weeks and test them again to see if they are dipping even lower during those times.

From what this report told us, (this is for you, delurker Dana...all that cool terminology) his hemoglobin, hematocrit, mean cell volume, and haptoglobin levels are all low. The Pulmonologist is a little concerned that he is breaking down his red blood cells during his "cycles". However, since his levels have always been lower than they should be, there is also the possibility that these levels are just a result of whatever else is going on in his effect of whatever is wrong with the little guy. If the results are even lower when we test him again during his next weak cycle, we will then see the hematologist. Though, from the Pulmonologist's reaction after talking to him, I don't think the hematologist knows what to think of these levels in relation to Nathan's other issues either. All together now: This kid is an enigma!

We did learn a bit of new info from this blood test though...Nathan's IgG (immunoglobin) level was lower than it should be. This is the level of immunity your body has to bacterial and viral infections. Since he was breastfed for the first 3 months, I would hope that this level would be higher than it is. Hopefully this doesn't mean that he is a bit immune deficient. I will be anxious to see what this level is at the next test as well.

I emailed some pics to our Dr. for his presentation of Nate's case on Monday...some of his belly breathing, and one of him turning grey around his mouth and eyes. Oh, if I could be a fly on that wall on Monday...


Melodie said...

YAY PURELL! hehheee!! Amber, i know rather unlikley BUT there is always the possibility that there are 2 separate things going on with Nate. I think that's why it took us so long to get Taysen's SMA dx, b/c he also had an adrenal insufficiency, CAH, totally separate and equally as rare.(and genetic too) they said no way he has 2 things going on. You just never know. He looks fantastic in his pictures, sitting and the belly shots too, go Nathan! SO CUTE!

dana on August 9, 2008 at 5:01 AM said...

Lurker no more! How COULD I be when I was *gasp* mentioned in a post?!!?!

OK...taking this information to the Powers That Be (my boss) and will pass the info along when I get it!

(I hope you didn't give the docs one of Nate's really, really, really cute pics so they aren't distracted by subject so much that they aren't able to do their jobs!)

More later...until then, hang in there!


amber on August 9, 2008 at 9:24 AM said...

No. just his abnormal pics. :) Although I was REALLY tempted to give them a really cute one. HA!

amber on August 9, 2008 at 9:26 AM said...

Oh Dana, my email is if you hear anything really cool from the Dr. you work for. Thanks!!! :)

Kayla on August 9, 2008 at 9:48 AM said...

I hope this new direction will produce some results for your little Nathan. I am still praying.

Jill Chandler on August 9, 2008 at 12:35 PM said...

We'll be praying that Monday's presentation will trigger some new brainstorming and some new ideas about how to proceed to take care of your little guy!
Hope you sent the Dr. some of your adorable shots of your Nathan along with the medical observation ones!

oh amanda on August 9, 2008 at 10:54 PM said...

I don't even know the right response, but I'm so glad the docs are SO interested in him! That seems like a great thing to me!

Always praying!

The Princess on August 10, 2008 at 8:16 PM said...

As always, we continue to pray for Nate"Dawg" :) and the rest of you guys! Let us know if you need well as clarification on Abby's school stuff!
Love ya,
Ash & Phillip

Merrie on August 11, 2008 at 5:06 PM said...

Too bad you can't attend the medical discussion. But I suppose they don't usually let the mommy's in, do they?
One day at a time, I guess, but I'll be glad for you when there's an answer to all the mystery. And I'm so happy you have such wonderful doctors.

PS LOVED the peach reaction. LOL!

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