Wednesday, September 3, 2008

The good and the bad

The good news: Nathan more than likely does not have cancer! The ultrasound of his abdomen looked great with no visual evidence of tumors, and his CEA level is perfectly normal.

The bad news: Nathan's AFP level was pretty high, indicating that something screwy truly is going on in his liver. His neurologist referred him to a pediatric gastroenterologist, bringing Nathan's specialist doctor count up to 4. Hopefully he can shed some light on the liver problem.

After poking a thermometer in the poor guy's rear every couple of hours for a few days, we are starting to figure out that Nathan's temperature issues seem to be related to his energy consumption. When he wakes up, he has a perfectly normal temp of about 98.0-98.5. As soon as plays around on the floor for a little bit, his temp shoots up to the 99.7-100.5 degree range...a good 2 degree differential. After talking to our neuro's nurse practictioner for a while today, she confirmed that with so many of Nathan's systems being affected, his problem is looking more and more mitochondrial in nature.

We have our first hematology appointment on Monday morning, and we meet with our neurologist again on Thursday morning. And from the way she was talking, I don't think it will take long for gastro to see him either. Even though it is tough to find more and more things that are abnormal with our little guy, we are thankful that we are getting closer to finding out what truly is causing all of this. And through it all, the little man keeps smiling and laughing.


skye on September 3, 2008 at 5:06 PM said...

I've been praying diligently, and specifically, that cancer wouldn't be "it" - thank the Lord!

Still praying & thinking of you all constantly.
Love you guys!

Katie on September 3, 2008 at 6:48 PM said...

Oh praise God, I was holding my breath. I am so glad no cancer- that was my prayer, too. He is so good!! I can't believe it's taken THIS LONG to get to the bottom of it... well, you're still not there, but you know what I mean! Praying for you...

Precious cowboy baby.

Christine on September 3, 2008 at 9:48 PM said...

Soooo relieved to hear that it is not cancer. I can only imagine how hard it is to have so many specialist...some one soon is bound to say "this is what it is...without doubt!!" and I pray that day will be soon.

I am LOVING the naked cowboy pictures...OMG!! Can he be any cuter?!!?

Amanda on September 3, 2008 at 10:12 PM said...

So glad he doesn't have the "C" word! Thank the Lord.

You must stop with the naked cowboy pictures; I don't think I can take any more!!!!!!!!

He makes a good GAP commercial in his b-day suit!

Jill Chandler on September 3, 2008 at 11:27 PM said...

Dear Amber, Those cancer-sounding words were scary sounding, so we, too, are thankful that's been eliminated. We'll keep praying for you guys and for all of Nathan's docs!
Love, Jill

Jonatha on September 4, 2008 at 8:40 AM said...

That is quite possibly one of the cutest baby pictures I've ever seen!

Jennifer on September 4, 2008 at 1:43 PM said...

We're thankful for this good news and will continue to pray for your upcoming appointments.

I agree, that has to be the cutest baby pic ever!

Dana on September 4, 2008 at 3:27 PM said...

He is so so precious! You will have to take pictures of Joshua like this! I am so thankful for the results, and will pray more and more for him! We love you guys so much and admire your strengh and courage more than you know. But even more, I admire how you give God praise and honor even during your difficult times. Thank you for being such an awesome soldier for Christ and a wonderful example to the rest of us!

Trina on September 4, 2008 at 5:40 PM said...

You all are in our prayers. We are thankful that you are getting closer to an answer.

I love the naked cowboy! He is too cute!

oh amanda on September 6, 2008 at 12:26 PM said...

I haven't been around too much--but still checking in on you guys...and always praying. I was just thinking the other day that one reason the docs just don't know what to do with Nathan is b/c they've never seen someone who's body is being touched by God! I know you're continually going to some new scary area, but wow, the horrible places we've left behind is truly a miracle!


(and the cowboy? i want to eat him up!)

Amber Schmidt on September 6, 2008 at 11:21 PM said...

Huge hugs to you... I know the road you are walking down is stressful and scary. I have been down that road...heck I am still lost on the route somewhere I believe. Whatever is to come I am more than sure you will handle with grace and peace. It is what we do. It sounds so cliche but I know that I can say this without reservation... God only gives these extra special babies to those who can handle it. We may not FEEL like we can... but we just do.


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