Monday, September 8, 2008

Look what the little dude can do


Okay, no more cowboy pics...how about cute little page boy pics? All he needs is a good pair of suspenders:So, the little dude can stand on his own. How cool is that? He started pulling up to standing in his crib a little over a week ago...I walked into his room to check on him and saw him standing for the first time. I screamed with excitement and he gave me the bottom lip poke from being freaked out by lunatics bee-bopping into his room and screaming at him. He obviously wears his feelings on his bottom lip. Now, if someone can kindly remind my son that we do not need to practice this new cool skill of partying in your crib in the middle of the night, that would be grrrrrrrreat! Nate's hem-onc appt was this morning. Our hematologist is a sweet little woman who laughs a lot, so we hit it off from the start. I love her personality and am once again thankful for the wonderful doctors that are treating Nateman. Nathan was in typical Nathan-fashion today and literally lunged into his doctor's arms and gave her more smiles than I thought was humanly possible.

We were referred to her because of Nathan's neutropenia (low absolute neutrophils) and other quirky bloodwork. His neutrophil count was a bit higher today...the percentage was still low, but his abs neutrophil count was in a more normal level. It looks like he could be suffering from cyclic neutropenia. The only way to know for sure is for him to have blood work done every week for 6 weeks. I told the Dr. that I wanted to hold off on testing him for it unless he started having recurrent bacterial infections, and she was completely fine with that decision. I just hate having to do any more bloodwork than we are currently doing already...I mean, he was stuck twice today for blood tests. Even though he doesn't seem to mind the tests that much anymore, I still hate for him to endure them.

The one thing that she was really concerned about was how low his IgG count was. She said that on paper, it looked only mildly low, but it was very very low for someone Nathan's age. So low that if his levels are still that low from today's lab work, he will more than likely have to start having IV infusion immunoglobins. She is going to talk to our neurologist about this, and we go back to see her in a couple of weeks.

So right now, we are concentrating on his IgG counts. It does look like Nathan might have some sort of immune deficiency, and we are so thankful that he hasn't really gotten sick before now (he has a runny nose right now). She also said that she will probably want to do a bone marrow biopsy whenever he is put under to have a muscle biopsy to take a better look at his cells and see why his blood work is coming back abnormal.

All in all, it was a great appt. I know that sounds like a lot of frightening information, but it was all pretty much expected. The bad thing about the internet is that it will scare the begeesus out of you with any medical info you may have, but the good part about it is that it will prepare you for the next steps you know you will eventually have to face. The hematologist also said that we would probably be referred to genetics/metabolism soon and to ask our neurologist about that. We see him again on Thursday...another long day at the pediatric specialties clinic.

11 comments:

Michelle on September 8, 2008 at 5:19 PM said...

Oh Amber, he is starting to look like a little boy, and not a baby! I hope Abby is enjoying her 'home-school'. I think poor Jimmy wishes he could do it!

Kayla on September 8, 2008 at 5:26 PM said...

Isn't it amazing how God continues to work in your little man's life. He is standing and developing despite his mysterious disease. God is truly in control. I will be praying for Thursday.

AmyG on September 8, 2008 at 6:57 PM said...

I can't believe he's standing already, when not long ago it was hard from him to just sit up. He's got a beautiful smile.

I don't understand any of the medical stuff, but I'm glad that they are testing everything. Hopefully one day soon, they'll have a definite answer!

Katie on September 8, 2008 at 8:31 PM said...

Oh, girl! You have such a good attitude. The appointments alone would make me crazy. Press on toward the goal... we will pray.

dana on September 9, 2008 at 9:03 AM said...

Well, I thought it was the cowboy outfit that was killing me.

It's not the outfit, it's the little munchkin WEARING it! Ugh! The pageboy?!?!? wahhhhhhhhh...

I really can't say much more than how absolutely amazing your pictures are. I love seeing your new creations posted here!

OK...onto medical jargon. I don't know much about the stuff you posted, but my doc does the bone marrow biopsies and they're a piece of cake, especially if he's going to be under anesthesia. So not to worry about THAT! Sounds like you found a good doc AGAIN! Thank goodness for that.

Seems like we're (haha...we?) moving in the right direction. Keep it up and I'm certain the answer will come soon.

xoxo

skye on September 9, 2008 at 12:30 PM said...

I cannot believe he is standing - that is awesome!!!! And he definitely is losing his itty bitty baby look - he's starting to look like a little boy! He's deliciously cute ;)

Still thinking of you guys.

Jill Chandler on September 9, 2008 at 1:55 PM said...

LOVE that last shot!! I can see him cruising in a convertible!

We'll be praying for Nathan's doctors and you.

~sydney~ on September 9, 2008 at 8:55 PM said...

Wow! Adorable pictures! He looks like a cute old man in the black and white picture days! ha! You make me miss him and his sisters SOOO much! We will be keeping little nate in our prayers! We love you!

tammy said...

In light of all he's been through, it's amazing that he is meeting his milestones at the "normal" or usual times as every other healthy kid. Still praying that whatever unknowns are encountered God will make them no obstacles for Nathan's continued growth and well being.
Love,
Tammy

Autryville on September 10, 2008 at 3:03 PM said...

Oh, Amber! He's such a miracle! I love seeing your positive updates on what he can do. And the Lord is just with you--what an oustanding example you are to mom's like me. BTW, Luke can't crawl yet or pull-up. Nate's showing this big boy how it's done!

Amber Schmidt on September 18, 2008 at 5:52 PM said...

o m g..... how cute is he???????? so glad to see that nothing gets him down... yet another thing we have in common... our kids are like energizer bunnies... they just keep on going!

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