Tuesday, September 30, 2008

Quick update

We're all still here...just tired and busy as can be. Nate's GI appt was today, and it was pretty uneventful. His AFP marker came up again, and his GI doc has no idea why. It still isn't terribly high...if it was signaling tumor activity, the level would be in the 100+ range. His level from last week was 20 with a reference range for the test of 0.0-8.7. Like I said, not terribly high to signal immediate trouble, but it could be signaling something else since it is rising just a wee bit instead of continuing to go down (the level was 15.7 a couple of weeks before).

Our GI doc said that he needs to do some research and get back to us because he has no idea what could be the problem. Hmmmmm, seems to be the story of the past 7 months. We see him again on Halloween.

He seemed to be a great doctor and was super nice, but it was a frustrating appt because he had no ideas and more questions. He was wondering out loud about Nathan's elevated platelets over the past month and self-questioning if an immune deficiency could cause elevated AFP levels, etc. He also noted that Nathan still has ankle clonus, which is a neurological symptom that should have gone away a few months ago. Him bringing it up at this appt triggered a memory of our neurologist briefly mentioning it a couple of appts ago...and I am kicking myself in the rear for not inquiring more about it at either appt. There are always so many little things you forget to discuss...adding to the frustration of these days sometimes. Oh well, we see our neuro again on Thursday, so I'll ask him about it then.

One of my best friends, Tara and her daughter Jolee (one of Abby and Emma's best friends) spent the night with us last night so she could keep the girls for me today through Nate's PT and GI appts. We had so much fun, but stayed up way too late talking...hence the exhaustive rambling tonight. Thanks so much T! I had a blast!!!

Of course, can't leave you without a picture...


Tara on October 1, 2008 at 3:19 PM said...

Are we getting to old to "hang"? I'm still tired today, but it was a blast and I can't wait to do it again! Jolee cried herself asleep in the car saying... I want to stay at Abby and Emma's house please!

Trina on October 1, 2008 at 3:23 PM said...

I love Nate's little man socks! We are praying for y'all.

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