Tuesday, October 14, 2008

Another great appt!

I can not fully explain to you how good it feels to have Dr. appts with good news attached to them. We go into each and every appt now with a feeling of dread regarding what they are going to say or some new thing they are going to bring up, so we are always so pleasantly surprised when the news is mostly good.
Nate saw Immunology today, and they were super nice. I LOVED her nurse practitioner. The great news is that Nathan's IgG levels are not low enough to need IVIG at this time. WOOHOO!!! That is such a huge weight lifted off our shoulders for the time being. They are going to give him 6 months to see if he can start making more IgG on his own before we even explore that possibility again. The other great news is that while his IgG is a little on the low side, he has indeed made titers to his pneumoccocal vaccine...the Dr. described it as his "quality of immune cells being better than his quantity" and that is fine right now.For the time being, he is to receive no live vaccines until we do some more immune function testing in March. Unfortunately for the girls, they are going to have to have the flu shot instead of the flu mist this year because the flu mist is a live virus and the girls would be contagious...they said that it is too much of a risk of Nathan actually getting the flu from them if they got the mist. Crazy, eh? But we don't have to see immunology for 6 months unless we see some other immune function things pop up...ie: not responding to oral antibiotics, etc.
Little dude has an ear infection and is now on abx for the next 10 days. We've noticed that he has been acting really strange lately, but he just came out of a weak spell from last week...hmmmm, makes me wonder if he is indeed going through cyclic neutropenia during those weak periods and his low neutrophils caused his ear to be infected. Interesting. (Don't mind me, just talking to myself here. I do it often.) We're also wondering if his seemingly worsening reflux is what has caused his ear infection since he hasn't had a runny nose or cold in a good month.
Which brings me to the next point of business...we are more than likely going to be doing a barium swallow study with Nathan to see if he is aspirating any since he is still refluxing so much. All of his doctors are completely stumped as to why his body temperature seems to be all over the place and why he gets daily low grade fevers, so they want to rule out aspiration. The NP also said that she was interested to see if there was an issue with his gut motility since he sometimes spits up whole pieces of undigested food up to 2 hours after eating. That's something we'll talk to his GI doc about at our appt in a couple of weeks.

So, there's your medical mystery update for the week. No more appts this week...ahhhhhhhhhhhhhhhhhhhhhhhh (that's a happy sigh, for those who can not actually see my happy sighing smile).


Amber Schmidt on October 14, 2008 at 2:14 PM said...

So glad to hear some good news!!!!!! Love the little mess monster pics too!! I need to remember to enjoy taking pics each day... thanks for reminding me that the little moments are the ones that count the most!

Kayla on October 14, 2008 at 2:20 PM said...

I'm always so happy to hear good news.

AmyG on October 14, 2008 at 6:51 PM said...

Yay for great news!! Love the new blog header. That picture is priceless! Same for the messy Nathan pictures.

Lisa on October 14, 2008 at 11:28 PM said...

I started following your blog about a week ago. What a blessing to get good news about your son! Will continue to pray for your family.

Lisa Q

mollie on October 15, 2008 at 9:03 AM said...

Good news is great to hear! By the looks of these pictures...maybe he is aspirating his lunch through his nose! LOL
Just a thought...
Adorable, as usual!

StephthefutrRxDr on October 15, 2008 at 1:59 PM said...

I'm so happy that you got some good news. What was your little man eating in those pics? LOL TOO cute.

Dani on October 15, 2008 at 6:51 PM said...

Poor unhappy boy, it's not the ear infection it's the coating of food, hehe.

TracyVDM on October 17, 2008 at 4:45 PM said...

When Avery had neutropenia, he had CONSTANT ear infections. Just an FYI.

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