Abby: "Mom, what does this say?"
Me: "I don't know. I can't look behind me when I am driving."
Abby: "But I thought that you had eyes behind your head."
Me: "Yeah, but they only open when you are doing something you aren't supposed to be doing."
Nathan had his upper GI scan done today, and it went almost exactly like we expected. It didn't hurt him at all, but he was so ticked off about having the be held down and lie still, and I just hate seeing him so upset. He did not aspirate...woohoo!! I knew he wasn't aspirating, but it was more of a precautionary test that we needed to do to make sure.They needed to see him swallow, see it go into his stomach, and then see it go into his small intestine before the test was over. So we saw the barium go down into his stomach, and it sat there...and sat there...and sat there. There were a couple of looks between the radiologist and the nurse in the middle of them trying to coax the barium into Nate's intestine with "Come on. Just make that curve. Come on." We fed him more barium that sat in his stomach...and sat...and sat. Mind you, this is all amidst the poor child declaring to the world that he did not like to be held down. We finally fed him the last of the barium bottle and I sang to him until he calmed down. He sat there for a few more minutes and then the barium finally made the first move into Nate's small intestine. It was slow going, but it did make it.
There has previously been some talk about Nathan having Delayed Gastric Emptying (DGE), so this kind of confirms that to a degree. The radiologist did say that he would have to have a gastric emptying scan to tell how delayed it is, and to talk to our GI about it. Nate has an appt with GI on Friday. I really don't want to have the gastric emptying test done unless it is absolutely neccessary because Nate hates these types of tests so bad, so I'll see what the GI has to say about it.Nathan had more bloodwork done today to check his AFP levels again, and while we were at the hospital, I picked up his labwork from this month for our records. I found out that when he had the last round of labwork done, he was having mild neutropenia again (low absolute neutrophils). This was about 4-5 days before he had one of his monthly "weak cycles", so this is even more evidence that he is going through cyclic neutropenia during these cycles. I am going to wait to see if he continues to get bacterial infections during these weak cycles before we start with the testing of this though, since it involves blood tests every week for 6 weeks. The poor little man gets stuck way too much already. It's just not cool that the ladies who work in both labs we frequent know the little guy by name.
And to make this medical post even longer, I also picked up the immune workup he had done 3 weeks ago. Only one little part was back in time for our appt with Immunology earlier this month, so it was interesting to see the remainder of the workup. Turns out that Nathan has no antigens (antibodies) to tetanus and candida. He has had two immunizations for tetanus (DTaP), so he should definitely have antibodies for that. I emailed our NP for immuno to see what we needed to do because of these results. We will more than likely just have to have additional immunizations to tetanus until he is able to retain some titers. He has had some issues with unexplained diarrhea and a nasty yeasty diaper rash, so those may be from the candida. Who knows? It definitely makes you question it all. Nathan also had some other immuno labs come back abnormal (shocking!), but I can't figure out what they mean and am waiting for a return email from the NP to see if they are of importance or not.
So that about sums up our day. Except for the fact that poop after consuming barium is NASTY! Just so you know for the future. And that people who live here truly don't know what to do when it gets down to the 30's in October...we're all like reptiles. We move slowly when it's cold and complain a lot. So get used to it.