Friday, February 6, 2009

What we've been up to this week


Someone commented on the previous post about how wonderful God's timing was in regards to our pre-planned trip to Disney next week. It is also wonderful in regards to the events we had previously planned for this week...
I had previously mentioned about the online forum that I have been a part of for the past few months for families undergoing testing for or who have children with mitochondrial and metabolic diseases. I have had the privilege to create quite a few friendships with the mothers on that board, and I have even had the wonderful opportunity to meet a couple of the families from the forum who were down here seeing specialists at our Children's Hospital.

The Hobbs family traveled down here this week to spend a few days inpatient at the hospital and have some additional out-patient testing done. It was so good to spend some time with Jenny (the mom) this week and "talk shop" about different labs and procedures and tests. And it was especially wonderful to see her precious children and get to know them better. Yesterday, we all met for lunch and let all the kiddos play, and then we took an adventure to our local Natural History Museum. Our kids instantly hit it off, and by the middle of the playdate yesterday, Abby and Michael were holding hands wherever they went. It was mighty adorable, to say the least!
We had planned on them coming to the house to play today after some procedures they had this morning, but Emma woke up with a nasty runny nose that I am positive is the start of a cold. Abby was quite sad and perturbed and said "Why did Emma have to go and get sick and ruin all the fun?!" Oh, that sister love...it's just brimming at the top sometimes. Thankfully, this precious family should be down here every 6 months for routine testing with their specialist, so we have already planned some fun activities for when we get to see them again in September.

It was a great week with this family. It was good to be around Jenny this week, of all weeks and see the sheer enjoyment and happiness this family has despite having medical complexities. And it was so wonderful gaining another friend. Thanks for the fun week, Jenny! See you in a few months.So, we leave for Disney in a few days. We will have internet access in the hotel, so I may be able to post some pictures some next week. We are excited about this trip, but I still haven't even started packing or getting things together for being gone for an entire week. Yikes! And I'm really hoping that Emma's cold is short-lived so that she is ready to tackle the mouse on Monday...and while I'm hoping, here's the hoping that no one else gets sick. Or else it will make for one very unpleasant week ahead.

3 comments:

Amanda on February 6, 2009 at 2:53 PM said...

So glad you finally have an answer for Nathan. I know it's bitter sweet though. Still praying for you all and thinking of you often. Hope you have a marvelous trip next week with Mickey(I am green with envy right now!) and that last picture of Nathan today is to die for. Oh my word!!! Love y'all.

Jenny said...

We also had a great time with you guys! It's so nice to talk to someone who "gets it"! Looking forward to getting together soon!
Jenny

Brandy on February 19, 2009 at 8:34 AM said...

I remember when Darcy had a love for rocks.
Nathan is adorable.

Blog Archive

Followers

 

Life with the Ferrells Copyright © 2008 Green Scrapbook Diary Designed by SimplyWP | Made free by Scrapbooking Software | Bloggerized by Ipiet Notez