Thursday, March 19, 2009

An update from a prayer request

I asked for prayer for a friend of mine from the great state of Missouri back in January...their son was undergoing a muscle biopsy at that time. They received the results from the biopsy today, and their son (who just happens to be Nathan's mini-medical-clone) has been diagnosed with Mitochondrial Disease, Complex III. That part did not come as much of a surprise to this family, as they have been expecting this for the past several months...but as we know first-handedly, it is never easy to hear.

But this family also received some additional perplexing information in that their son seems to have a glycogen storage problem (another metabolic disorder) on top of everything...the question is whether this is a disease in conjunction with mito or something completely separate. I am sure this family would appreciate your continued prayers as they try to continue to figure out the answers to these questions.

Liz (the good mama of this family) and I have spent hours emaling back and forth daily and talking on the phone to eachother a few times, and I truly look forward to meeting her this summer at the Mitochondrial Disease Symposium in Washington DC. In fact, we are going to be roomies. She has been such a blessing to me over the past few months as we have tried to solve the mystery of our boys, and I look forward to actually meeting this dear friend of mine.


AmyG on March 20, 2009 at 12:03 AM said...

Will keep praying! For both of you!

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