We've done a lot of sleeping today (both of us), and Nathan is looking so much better now. He is consuming more by mouth now, and although it is slow going with his stomach, at least he is eating and drinking some. His energy levels were getting so much better by tonight. My little guy is back! He is still weak and has a tough time walking at times, but he is returning to his normal self again...even when being dressed up and tortured by his sisters.
I do ask that you keep the little guy and us in your prayers over the next few weeks. As soon as his Pulmonologist gets back from vacation, Nathan is going to have some rather painful testing to help figure out why he breathes the way he does. I have always declined him having an ABG (arterial blood gas) because they are so painful, and we have gotten by so far with just having VBGs (venous blood gas). Unfortunately, an ABG is the only test that can really show us exactly what is going on with him respiratory-wise at this point. As much as I hated obliging to this testing, I do agree that it is very much needed at this point. So, within the next few weeks, Nate will have an arterial IV inserted so we can gather a LOT of labs, both while resting and after activity.
Not only have we been struggling with his breathing all summer, but we have been struggling with his weight loss as well. This stinkin' virus seems to have put us quite a few steps back on this race to put weight on the little dude. And a conversation with our pediatrician this morning confirmed what we have been wondering lately...we may need additional support in the future to help Nathan gain weight. She said that we need to contact our GI doc sooner than our appt in 3 months and discuss additional options that what we are currently doing. Vague? Yes. I'm hoping and praying that his stomach will wake up soon so we can continue to fatten the little guy up and not have to make a sooner appt with GI.
So please continue to pray for Nathan...and pray that we will be given wisdom on the major steps that may lie ahead of us.