Wednesday, August 5, 2009

Back to being tortured by his sisters

We've done a lot of sleeping today (both of us), and Nathan is looking so much better now. He is consuming more by mouth now, and although it is slow going with his stomach, at least he is eating and drinking some. His energy levels were getting so much better by tonight. My little guy is back! He is still weak and has a tough time walking at times, but he is returning to his normal self again...even when being dressed up and tortured by his sisters.
I do ask that you keep the little guy and us in your prayers over the next few weeks. As soon as his Pulmonologist gets back from vacation, Nathan is going to have some rather painful testing to help figure out why he breathes the way he does. I have always declined him having an ABG (arterial blood gas) because they are so painful, and we have gotten by so far with just having VBGs (venous blood gas). Unfortunately, an ABG is the only test that can really show us exactly what is going on with him respiratory-wise at this point. As much as I hated obliging to this testing, I do agree that it is very much needed at this point. So, within the next few weeks, Nate will have an arterial IV inserted so we can gather a LOT of labs, both while resting and after activity.

Not only have we been struggling with his breathing all summer, but we have been struggling with his weight loss as well. This stinkin' virus seems to have put us quite a few steps back on this race to put weight on the little dude. And a conversation with our pediatrician this morning confirmed what we have been wondering lately...we may need additional support in the future to help Nathan gain weight. She said that we need to contact our GI doc sooner than our appt in 3 months and discuss additional options that what we are currently doing. Vague? Yes. I'm hoping and praying that his stomach will wake up soon so we can continue to fatten the little guy up and not have to make a sooner appt with GI.

So please continue to pray for Nathan...and pray that we will be given wisdom on the major steps that may lie ahead of us.


His Mercy Endureth Forever on August 5, 2009 at 10:27 PM said...

I'm so glad Nate is back home from the hospital and doing better. I know it is not the same scale as what you are going through, but having just been in the hospital with Brady overnight, I know how hard it is to have to see your child put through painful tests. You all will continue to be in our prayers daily.

lkripp on August 6, 2009 at 10:00 AM said...

I'm one of your blog lurkers, always reading but never comment much. Nathan is always in my prayers. Your little guy is one strong dude! And you!..girlfriend, you are super mom! Your faith, positive attitude and ever present sense of humor are always an inspiration to me. I just know that He will continue to guide you, your husband and the doctors who treat Nathan, in the right direction.

Autryville on August 6, 2009 at 1:13 PM said...

I'll be praying for him, Amber. Just the thought of an ABG makes me cringe...even as a nurse, I could hardly watch them being done. I know, though, that he (and you) will come through it amazingly, with the Lord's help.

Thankful to hear that he's feeling better.

Amanda on August 6, 2009 at 3:02 PM said...

i am lovin that pappy!!!

Amber on August 6, 2009 at 3:15 PM said...

Yep, we made the switch after he started taking James and Audrey's pappies. :) At least your style is a lot cheaper than our old one. LOL!!

Melodie on August 6, 2009 at 3:49 PM said...

we will continue to keep Nate in our prayers, and are so thankful that he is home. i hope you get some good info from the ABG, although so sorry he has to have this done :( HUGS

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