Tuesday, October 27, 2009

That blasted flu


One of the hardest things about this disease is that you are almost constantly wondering what lies around the next corner. What is going to happen next...and when. Sometimes it is difficult to fully enjoy the really good healthy days because you always have that nagging feeling in the back of your mind that the next shoe is going to drop. Or however that saying goes. But it's always there, no matter how good the days are going. It's exhausting at times...the never knowing what is going to happen next. You learn to expect bad news and get really excited at good news. That's just how you seem to prepare yourself for everything.This disease can change at the drop of a hat. I've never seen a kid go from playing and laughing to really sick as fast as I have seen this happen to Nathan a handful of times. It hits you from seemingly no where. Nathan's new ER protocol letter we received from his mito doc showcases how fast these kids can decompensate...it also showcases a lot of words that I don't like to utter when relating to Nathan's disease. The hard reality of it is too much to bare at times. This nasty disease makes him prone to going from healthy to the worst case scenario in a very short amount of time if precautions and treatment are not administered immediately when he is sick. So to say that we are constantly on edge every single time he gets sick is a vast understatement.
Nathan has the flu. He was perfectly fine yesterday morning...running around here and laughing and playing...and then he all of a sudden spiked a 102 degree temp with a runny nose. 2 hours later, he was vomiting...the effects mito has on his stomach each time he is sick, causing his motility to slow down to a crawl at best. A trip to the pediatrician didn't give us many answers, but he was able to eat and keep down a popsicle. The flu test was negative, but the ped said that she didn't believe the test since his symptoms had just started, and the test is granting a lot of false negatives these days. We took him home with instructions to head in for fluids if he continued to throw up.
He slept for a while and woke up feeling just awful with a fever heading toward the 103 degree mark. He started vomiting again, so a trip to the ER was warranted. It is imperative that he can not get dehydrated, as that can throw him into a mitochondrial crisis. The ER was full of a lot of scary and stinky and nasty looking stuff going around. Some of the inhabitants of that waiting room had been there for 8 hours. There were a lot of red noses, broken appendages, hurling noises coming from behind the closed door to the community restroom, and people all around with the eerie look of funk written all over their faces. It was skeery...who needs Halloween when a local ER will do just fine for a fright night. Thankfully, Nate's status in the computers at our hospital is always the most severe status a patient can have, so he usually gets back quickly. I did request that we have a purell bath upon entering the next room of our journey.
8 hours later, the consensus is flu. They didn't even run another swab because they said that he had all the symptoms and it was imperative that he get started on tamiflu. We had to wait so long to see if he would drink anything, and when he wouldn't, he was set up for some IV fluids. The tank of fluids should give us some more time to be able to fight this bug at home while the tamiflu does its bidness at kicking it to the curb. He's doing okay today...still high fever, but he is at least talking and doing a lot of sleeping. I'm hoping that he continues to do well so we don't have to make another trip to the land of the funk. And I'm really hoping that we can get back to the days of less worry...the little man has had a really really good past 2 months, and it has been a sure joy to see him so healthy lately. I pray that we can return to those days soon.

10 comments:

Kayla on October 27, 2009 at 2:25 PM said...

So sorry that your little one is sick again. I'll be praying for him.

Anonymous said...

Amber - we continue to pray for little Nathan and all of you. We love you!! Beth

Melody on October 27, 2009 at 2:58 PM said...

Poor baby! We live in fear of the flu here, too. If he does need to go back in, you may want to check with your ped about doing a ddirect admit so you can bypass the ER...that place gives me the heebee jeebees, too! Hope he turns the corner soon.

When you feel up for a chat, just give me a call...I am up late (as you know!) and totally free at naptime. HUGE hugs, girl...hang in there.

the Spocks on October 27, 2009 at 5:01 PM said...

I am so sorry he has the flu. I hope no one else gets it.

One of daughters friends got it but she was the only one in her family to get it. ER's are the worst places, breeding ground for germs.

Nicole, Drew, Jack, Megan, Sophie, and Lucy too on October 27, 2009 at 5:02 PM said...

Oh Amber, I know exctly how you feel! I pray every day for the sickies to stay away! So glad to hear that your local ER takes Nate's diagnosis so seriously, it makes such a difference. Hang in there, I pray that the rest of your family does not get it.

My name is Cait on October 27, 2009 at 7:35 PM said...

Lots of prayers from me.
Cait

Anonymous said...

Hugs sweetie! Hang in there Nathan. Get better real soon!

Linda

Anonymous said...

We are so sorry Nate is sick. We are praying for ya'll.
Love you guys, Dar Dar and Shermi

Heidi on October 29, 2009 at 6:15 AM said...

Awww, poor kiddo, I hope he's doing better tonight, more hugs and prayers thats he's back to his ol' self soon :) give a kiss from Jack and I!.

Amber Schmidt on October 31, 2009 at 9:35 PM said...

stupid flu... we are STILL fighting it here at our house and the first signs of it came around almost 3 weeks ago now... it sucks. Although, oddly enough, Kyleigh seemed to kick this flu easier than ANY of the rest of us... go figure...

Praying that everyone in your home is feeling better very soon!

Blog Archive

Followers

 

Life with the Ferrells Copyright © 2008 Green Scrapbook Diary Designed by SimplyWP | Made free by Scrapbooking Software | Bloggerized by Ipiet Notez