Thursday, December 10, 2009


We ventured out to the med plaza this morning to see all of our favorite nurses and one of our favorite doctors: Nate's neurologist. It was a loooooooong, but great visit. From a neuro standpoint, the little guy is doing just great. His tone is still low, but greatly improved since he was a baby. And his muscle weakness seems to be what is causing his funny run and asymmetrical chest muscles. Our neuro also reiterated that it is imperative that we aggressively treat even the most minor of illnesses with Nathan, as times of illness is when this disease can be thrown into a downward spiral of regressions from which he may not bounce back. It's always scary having that looming over our heads, which is why we are super vigilant each and every time Nathan's gets sick. But thankfully so far, Nate has bounced back relatively well from his tough bouts of illness.

It is always so wonderful to talk to our neuro, as he seems to know this disease more than any other doc in these woods. I am constantly amazed at God's work in having this one neurologist overseeing Nathan's care from when he was just a few weeks old. When it takes years for so many others to be diagnosed, our neuro caught the red flags when Nate was just 4 months old. God is so good.


Tara on December 11, 2009 at 10:38 AM said...

That video is so cute! But man, when he sticks that bottom lip out it breaks my heart!

Nicole on December 12, 2009 at 10:11 PM said...

What a cutie!! He is just adorable!

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