Tuesday, April 6, 2010

God Bless Texas

First off, here is the obligatory Easter pics of the kids before heading to church Sunday morning. I made a risky purchase a couple of months ago with the girls' dresses since they were sleeveless, but it was a warm 84 degree day in the land of Flarda on Easter. The cool temps are definitely over and done with for another 9 months. With a brain full of mush and hullabaloo, I ran off and forgot my camera to take pics of the kids hunting their easter eggs that afternoon, but believe me when I say that they were adorable and loaded completely up with sugar by the end!Nathan and I left the land of palm trees and sink holes and traveled due west to the land of cowboys and lone stars. It is no secret that I absolutely love Texas...there is so much about the state that gives me a warm and fuzzy feeling in the bottom of my stomach...or maybe that is the mexican food doing that. Regardless, I find it a treat to be able to visit the state every few months now to see one of the best mito docs in the nation. Now, if only Houston was easier to navigate and the GPS wouldn't keep getting me lost, the world would be a better place for everyone.
Nathan did really well on the trip here yesterday. He slept through both flights from start to finish and gave me mucho time-o to read and enjoy the flights. Between flights, our gate was entirely too close to a play area at DFW. Since I could obviously see mega-large kid traveling germs having a little party on the brightly primary-colored contraptions, we did some mega washing and a lot of praying that Nate wouldn't pick up any airline germies for our visit this week. He did have a great time on the play equipment though.
We had dinner with the Knight family last night and really had a good time catching up and getting to know each other more. Lauren and Samuel both have mito, and I am so thankful that Nathan is able to meet kids like him and hope that it is the beginning of long lasting friendships for them all. I think Nate has a crush on Lauren, as he kept flirting like crazy with her last night. Lauren and Samuel are just the sweetest kids with the best personalities...love them to pieces!

We met with Nate's mito doc this morning, and it was a great visit. It is always such a comfort to meet with someone who understands nearly every aspect of the oddities of this disease. Since she sees so many of these patients, she is able to see and understand the problems associated with mito better. Plus, she seems to genuinely love these kids, and it totally shows in how she interacts with them.
Dr. K gave Nathan one of the adorable Mito Mike stuffed turtles today, and it is just so cute! It's shirt says "Mito Mike Says, 'Slow and Steady Wins the Race'", which is a good slogan for an energy deficient disease.

We also saw Samuel Knight again today since he had an appt with Dr. K shortly after Nate did. If you have been following this blog for a while, you will remember that I asked for prayer for Samuel a little over a year ago as he fought for his life on ECMO at Texas Childrens. He was placed on ECMO as a last ditch effort but was not expected to live through it. Our God had other plans for Samuel, as he has made an incredible recovery! After his life making such an impact on me and several others, it was simply a treat to meet the handsome little fella. He is such a blessing in so many ways and such a testament that God is in control of every situation.


hobbsfamily on April 6, 2010 at 6:03 PM said...

So you took oxygen this time - how was it? Did you take it on the plane or just have it delivered there? Can't wait to hear all about it! You can even call tonight after Nafey is asleep! :-)

Melody on April 6, 2010 at 9:19 PM said...

Such Cuuuuute pics! I can't wait to see you guys tomorrow. We are just going to have a really easy, laid back day...so plenty of time to catch up. Glad you had a good time meeting Missy. She is great!

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