Nate was released from the hospital today, and he was so happy to come back to his Nana and Pawpaw's house. In his own words in his hospital bed as he greeted his dad this morning before we left, "I all done here, daddy!" It amazes me to see his thinking grow regarding dr. appts and hospital visits as he grows older. When we were heading to the hospital, he asked "I gonna be hurt?" I told him that he would be hurt (IV insertion) for just a little bit, but it was only so special medicine would make him feel better. I knew he understood that because he would talk about his IV later as his "medicine". He hardly moved and only fussed a little when they were inserting his IV, which is always a bad sign with him, as it showcases how sick he truly is...but that IV is truly amazing to his body during certain times. Nate did not complain at all about being in the hospital and seemed to completely understand the necessity of the stay.
So, we got the release from Kentucky Children's today, and he was so excited to be reunited with everyone. He took a big nap this afternoon and played like crazy this evening. He is truly doing so much better, and we are so thankful for that. He remains of antibiotics (WBC count was quite elevated, along with his absolute neutrophils which signifies that he has some infection somewhere). Our guess is that this was an infection induced mito crash. His GI motility just isn't what it used to be, and we are seeing significant changes each time anything stresses his body.
But he is doing well now, and we are hopeful that we will enjoy the rest of our Christmas trip without significant adjustment. As Christmas approaches, I ask that you keep two families that are very close to us in your prayers. Alex, our little mito friend is still intubated in the PICU in Houston...please keep him and his family in your prayers. And please remember the Knight family, as they are experiencing their first Christmas since Samuel's death. My heart hurts for these two friends during this time.