Monday, December 20, 2010


Nathan is doing much better today. The D10 and Zofran mixture really helped turn things around for him. He was even able to eat some dry cereal and a couple of graham crackers today. The question is still "what happened?" to make him so sick so fast. We don't think it is a virus, as he has no fever or diarrhea. However, his WBC was elevated, his liver was a bit enlarged and his bowel sounds were hypoactive (meaning lower than normal). My guess is that his GI system just took a nose dive.

We are highly impressed in the doctors here at Kentucky Children's and their knowledge of mito. The attending today said that Nathan seemed to exhibit a typical mito crash (as we have seen a few times before, but he hasn't gone downhill this quickly in a long time), and we may not know the exact reason to why his body all of a sudden went into crash mode. They are very kind and considerate here. It always makes you a bit nervous to take your child into a new place where they do not know him and may not know much about his disease, but I could not be more happy with the care my little guy has received here.

If the little guy continues to improve and starts drinking on his own (only had 3-4 tiny sips of juice today) and starts peeing (only peed once in the last ~20 hours), he will be released tomorrow. Hopefully this is just a small bump in the road on this trip, and we can all get back to enjoying our extended family this Christmas season. But I, for one, and very thankful that my parents live within a few short miles of a wonderful children's hospital...and so thankful that my little guy seems to be doing a lot better.


Wanda on December 20, 2010 at 7:13 PM said...

So thankful for the care Nathan received at the hospital! Pray you and your family will have a wonderful visit with both of your families and a safe trip back to Florida.
Will miss you!
Wandy & Bro. Jimmmy

Ash on December 20, 2010 at 8:13 PM said...

So happy to hear the littly guy is doing better! I hope discharge is on the horizon and he continues to keep cimbing back to baseline through the evening.

oh amanda {impress your kids} on December 21, 2010 at 12:22 AM said...

Praying, Amber! God's there...and he's already been to tomorrow. Love you guys!

Cheryl and Bricen on December 21, 2010 at 11:27 AM said...

Praying your little man improves to the point you guys are discharged to continue your Christmas celebration.

Kristine said...

Many prayers going up for your family and Nathan. UK is really a good hospital and thankfully they do know about Mito. Just so you are aware there are several nasty bugs going around the area. Hopefully Nathan gets back to feeling better and back to enjoying family.

Clara-Leigh on December 22, 2010 at 12:00 AM said...

Many prayers and much love to you guys tonight.

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