I've been sitting on this post most of the day, not really sure what to write...how to say it...where to begin. I feel like so many of my posts and thoughts lately have been about the hardships of raising a child with mito and of becoming so close to others in our "mito community". It is a community that no one wants to join but some are seemingly thrown into it with countless questions and rare answers, but amazing support and help from others living in this same "community". It's a rather small community, where most everybody knows, follows online, or at least has heard of most everyone else. We are close, in a way unlike most other relationships as this one is bonded in pain, heartache, frustration, and fear.
Our "community" has had a really tough few months, as quite a few of our beloved "mito kids" have passed away. It is a joyous moment for each of these children, as they leave their tired and broken earthly bodies to live perfectly and eternally with our Heavenly Father. I think of their smiling faces looking into the eyes of our Lord, and I am overwhelmed with jealousy and longing for that moment in my own life. Each of these precious children are experiencing the everlasting peak of joy and happiness, and that is a wonderful blessing!
However, they have all left grieving families on this earth. Families who miss being able to wrap their arms around them, squeeze their mushy little muscles, look into their wise eyes, smell the musky scent of their hair, and listen to each breath they take. They have left friends who have loved them and learned so much about the amazing strength, courage, and zeal for life that God grants these precious children. And they have left a community that understands the hardships of this disease, as they watch their own children suffer and painfully and fearfully wonder who may be "next".
Precious little Cooper Knight left his weary body last night and joined many of the others we have bid goodbye to in the recent past. I would love to know what they are all doing right now, and even though my finite mind can not currently imagine all the glory heaven holds, I can't help but think that they are all smiling and laughing.
Cooper fought a long and hard fight on this earth. He gave immense inspiration to so many who knew about his precious life. He was loved by countless others, but none more than his family, who are all so very heartbroken and sad now. Please keep Cooper's family in your prayers...his mom Sarah, his dad Kevin, and his older sister and brothers, Caroline, Adam and Oliver, along with grandparents, aunts, uncles and cousins. And pray for those in the medical community who have loved Cooper through their service and care to him.
Even though entering heaven is a joyous occasion, it is often quite difficult and excruciating for loved ones to say goodbye.
Until we meet again, sweet Cooper.