Saturday, March 26, 2011


We pulled into our garage yesterday afternoon at around 4:00. It was so good to be home. Nathan went back to bed at about 6:30 and slept until almost 9 this doubt from the exhaustion of this virus coupled with the exhaustion of staying in the hospital. And I have an amazing husband who let me sleep for a good 12 hours to catch up on what I had lost. We all feel much better this morning.

To recap the last day, the docs turned Nate's fluids off yesterday morning to see how he would respond and if he could maintain fluid intake well. I bribed him to get out of bed and walk a lap around our floor, and he seemed to enjoy the sights outside of the 4 walls surrounding us in the room. We got back and he slept for another 3 hours and woke up feeling a lot better and drinking quite a bit. His energy levels seemed to be rebounding quite nicely by this point, so I assured the resident that we could definitely continue his care at home. They were a bit concerned with how much he was still sleeping, but I informed them that while it was a bit excessive, it wasn't much more than he normally sleeps when well. He just sleeps a lot more than most kids his age...especially when his body is under any amount of added stress.

We came home, and he was so excited to see everyone. Other than the clotted holes in his arms and the sticky residue left from the tape and leads, you wouldn't be able to tell that he spent most of the week in the hospital. He is back to his funny self. He is so glad to be home. And so am I!

It is both comforting and sad to say that these admissions are getting easier on him. He knows what to expect at most every turn now. As soon as we get there, he starts talking about how the IV is going to hurt, but he never fights or tries to move when they are inserting the lines into his veins. He willingly lets random strangers check his blood pressure, temperature and examine him all over without hesitation. He chooses a finger for me to poke to gather the little amount of blood needed for his routine glucose checks while inpatient. He asks every single person who walks into our room "What you gonna do to me?", as he only wants to know what to expect. This gets a good chuckle from the people who are there to take out our garbage or check on all his equipment.

He just wants to know what is happening, and we all make sure to keep him informed on every single solitary step. His courage and ability to adapt so freely and willingly amazes me to no end. The grace that God gives my son to face these circumstances in his life is evident in so many ways. And I am so thankful for that.


Heather on March 26, 2011 at 11:21 AM said...

Isn't it amazing how good they are at going with the flow? And how God blessed these particular children with the ability to cope with such situations? It never ceases to amaze me. Glad he is feeling better and that you all are getting some well deserved rest!

Clara-Leigh on March 26, 2011 at 12:39 PM said...

So glad to read you guys are out of jail!!! He is just so darn cute!!! I love the photos, as usual. Can I come have a week of Camp Ferrell Photo and let you teach me in your ways????
Take care and hug that sweet Nate for me!!

Wanda on March 26, 2011 at 10:26 PM said...

So glad you are both home!

Kyla on March 27, 2011 at 3:59 PM said...

I am impressed with how KayTar handles her challenges as well. BubTar nearly had a heart attack when he discovered a loose tooth the other night, going through what KayTar does would do him in!

Glad you guys are home. Home is never better than it is right after a hospital stay!

Mighty Mito Mom on March 27, 2011 at 9:18 PM said...

Praise God you all are home and well again--and for husbands who will take care of everything so we mommies can get much needed catch-up sleep!

Allyson/HBMomof2 on March 29, 2011 at 2:11 AM said...

Such wonderful news. So glad that Nate is doing so much better. I so love these photos of him.

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