The little guy was taken back to pre-op and then the operating room about an hour earlier than we were expecting this morning. I have heard horror stories in the past about anesthesiologists not wanting to adhere to the somewhat controversial mito protocol when it comes to anesthesia, but we were nothing but impressed with the doctors who worked on Nathan today. They asked what has worked best for him in the past and what anesthesia we preferred from a mito standpoint and went with that plan.
They gave him a good slug of morphine directly after surgery, so that really helped control the pain. He has received 2 more doses throughout the day to help as well. We can always tell when he needs more pain meds because he either starts breathing really fast or starts holding his breath to keep from breathing as much. Once the morphine kicks in, he is a totally different kid. We are expecting that he will be much better with less pain tomorrow.
He has been an absolute trooper. He's tired and sore, but he has charmed the nurses off and on and enjoyed his company throughout the day as long as he can still see the TV over their heads. Tonight as one of his nurses was listening to his chest, he started rubbing her arms and said "You have really soft skin." Who knew the kid knew how to flirt so early! Or maybe he gets a little more friendly with some pain meds in him. Regardless, it gave us a good laugh.
His sense of comfort in this hospital is better than it has ever been, which is both great and sad. He rarely gets anxious anymore unless something is happening that he isn't used to happening in past visits. He has been darling and sweet and kind and well-mannered. His attitude continues to amaze me with everything he has to endure. God's grace and loving hand is definitely evident in Nathan's life, and it is simply incredible to be a witness to it.
Except for his meds, the little guy has been NPO all day to give his stomach a chance to heal some. We will start feeds tomorrow and see how he tolerates them. For you tube feeding moms, we are doing EO28 Splash (Neocate). And he is pretty excited that he no longer has to take his yucky meds by mouth starting tomorrow since we can just put them in his tube.
Thanks for all your prayers and words of encouragement. They truly do mean a lot to us.