Friday, July 1, 2011


We are home! We packed up boxes and boxes of our new supplies and formula, along with the toys and books and little goodies we had accumulated over the past week and gave the welcomed call to Jay to pick us up and take us home. We made the rounds to say goodbye to our favorite PCAs, nurses, and child life and headed home.

With each admission the little guy has, the closer we become to those incredible caregivers at our hospital. They definitely make our stay a lot easier. Nate creates little nicknames for his faves...Mr. Underpants for his favorite nurse, Ms. Diva for one of the PCAs whose name he couldn't pronounce, and Harry Potter for one of the respiratory people. He would only call them by these names, and they always got a kick out of it.

Our favorite PCA came by for his vitals last night and as she was leaving, Nate said "she doesn't have a tail, mama". "Well, of course she doesn't. Do you have a tail?" was my reply to him, to which he shot back, "Nope. I only have a booty crack." We laughed and laughed at that one.

The biopsies they took of Nathan's esophagus and stomach came back and showed no eosinophils or h.pylori, which is really great. It did show esophagitis, which is inflammation caused by his chronic reflux (due to his dysmotility), so I'm going to talk to GI soon and see if we need to up his dose of prevacid to help with that.

The little guy was sad to say goodbye to Grammie and Papa as they had to go back to Kentucky today, but he was glad to be back home with his sisters. He has still looked pretty puny all day though...he just doesn't look right. A little while after I started his afternoon feed, he became really nauseous and tried to throw up without success. His temp was a bit elevated and he just felt awful. I gave him some zofran and knocked the rate of his feed down and he perked up some, so I am hoping that it is just his body trying to adjust to everything still.

So hopefully he will perk up some more and his temp (which is currently 100.2) will not rise anymore. The cut-off for having to give them a call is a temp of 100.4. But he also had quite a bit of sediment in his urine this afternoon, so I am a bit cautious and hyper-vigilant right now. As for right now, we are just so glad to be home!


Kyla on July 1, 2011 at 5:56 PM said...

Glad your home! Hopefully the symptoms you are seeing are just from the extra stress on his body as he heals, I hope you guys are home to STAY!

september on July 2, 2011 at 9:48 AM said...

So glad you're home!

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