We have been really busy with family here and our annual summer meeting at church this past weekend, so I haven't had a chance to update since we got home from the hospital last Sunday. Many have asked how Nathan was doing, so I want to write a quick note to say that he is doing fine. Minus a 3 hour trip to our ER again on Monday because he stepped on his tube while walking up the steps of his bunk bed and pulled his entire g-tube out, he has done okay this week. *Just know that after crying when I saw Abby holding his g-tube in her hands because I was exhausted and didn't want to go back into the hospital, I was so thankful that the x-ray showed perfect placement when they were able to reinsert it in the ER. Phew!...and that the long tube has remained taped to his belly at all times since then.*Nate's had a big week with his grandparents (more pics to come later). He didn't feel good for a lot of it until we tweaked the volume of his feeds we were giving him. Once we cut down drastically on how much we were feeding him at night and worked with some other methods through the day, his little personality came back in full bloom. The short story is that 1)he can not handle bolus feeds at this time and 2)he can not handle 2 boxes of formula at night quite yet. But, as of today, he was able to have his daily rate increased to 45ml/hr with little issue! We have doubled his reflux med in hopes to curtail some nasty reflux he has had with all of this, and we hope to be able to reach his caloric intake goal by the end of this week if all goes well. It's slow going, but we are trying. The little guy is a trooper through everything.
**Pics from the past week will follow sometime this week.**