Monday, September 19, 2011

Mitochondrial Disease Awareness Week: September 18-24, 2011


This is the third Mito Awareness week we have experienced, and it is always quite enlightening to see all of the mito facts and figures that grace the blogs and facebook during this week. This has definitely been an amazing way to bring awareness to a disease that has the same frequency of childhood cancer, yet is still somewhat "unknown". It is something that has affected our lives since I was pregnant with our son, though we didn't know the name of the culprit until he was almost a year old. Its something that affects not only Nathan's life, but the lives of our entire family every single day of the week.

Attached is an updated video of Nathan's life with mito...


4 comments:

september on September 20, 2011 at 12:10 AM said...

Your Nathan is the sweetest boy ever! My nephew is going in for a biopsy in two weeks to test for mitochondrial disease, so this is hitting home in particular this year. Here's to hoping that in the years to come new research will help Nathan and everyone like him. You're amazing, Amber--the Mito community is lucky to have you as an advocate.

Clara-Leigh on September 20, 2011 at 12:26 AM said...

BEAUTIFUL!!!!!! THANK YOU!!!!
Much love,
Clara-Leigh

Barb on September 21, 2011 at 1:43 AM said...

That was beautiful!

Anonymous said...

What a beautiful baby boy! He is just like my two were, Thetis and TC. They are fortunate not to be quite as affected, but Thee is catching up fast. God bless your baby, and help us find that cure! Sean G Turner

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