It continues to amaze me how God places people in our lives at the perfect times that will become incredibly influential in many aspects of our lives in many different ways...and we don't even realize it at the time of the initial meeting...
When the daughter, who shares the name of our oldest: Abigail, was hospitalized for an extended time in January/February, we took the son (Noah) under our wings and into our home during that time because he could not spend the night in the hospital. He quickly became part of our family.
The Millers made another trip to Gainesville a little over a week ago. Unfortunately, Abigail's permanent stimulator has failed...a physically and emotionally taxing phenomenon that we know can happen for reasons no one truly knows. Our surgeon has said that it seems to happen after a really bad virus or for unknown reasons in his very few kids who have more going on than just gastroparesis (meaning a different disorder is causing the paralysis of the stomach). We know that Nathan is at an increased risk of not responding to the permanent stimulator...or responding for a while and losing that response. This is what happened to Abigail. She initially responded and then lost the response after a few months and after a tough virus.
Anyway, we had a great week with the Millers. It was a wonderful time of reconnecting and talking about anything and everything under the sun. I genuinely love her kids and enjoy having her, Abigail and Noah here with us. My Abby and her Abigail have become very close friends over the past few months, and Nathan looks up to Noah as a big brother and loves every little thing about him. I thoroughly enjoyed having another mother who understands the details of raising a child with multiple medical complications and "gets" the unusual workings of this gastric stimulator. This week was much needed for both of us, I believe. Please be in prayer for Abigail. The temporary stimulator will only last for about a month before the leads become dislodged, and when that happens, she will have to stop eating again and rely on j-feeds for nourishment until she comes back for another temp stimulator...this scenario will continue until the docs are able to figure out how to create the new stim.