That's the problem with medicine sometimes...and especially the problem with a kid who has so many "systems" involved and whose body doesn't play by the rules. They always seems to have so many issues that don't make sense. This time, it would be some of his lab values.
The docs noticed today that his liver was enlarged now, which is something that we totally expected. Due to how high his liver enzymes got and his history of hepatomegaly, I would have been more surprised if his liver didn't swell up at some point over the next few days.
But all in all, the little guy is doing great now. His energy and muscle strength is back to his more normal level, and other than some mild discomfort from feedings, he is doing excellent. He still isn't eating much of anything, but that makes me so thankful for his gtube...we would have been in the hospital a whole lot longer if it wasn't for that.
All in all, it was a good few days. If we erase the stress and adrenaline of the entire first day he was in, the rest of the time was actually fun for the little guy as he got lots of snuggle time with some of his favorite people in the whole world...