After a month of craziness and a huge hiatus from writing here, everything seems to have settled down at least a little bit. We were gone for the last bit of June and first of July, totaling about 3 weeks. While the trips were wonderful and much needed, it is so good to be home and settling back into the lull of summertime around here. I hope to add photos from our trips to Marco Island and Kentucky throughout the next few weeks.
Nate's first infusion will be within the next few days. He will be getting 2g of Hizentra each week and will see his immunologist every 4 months to keep track of his immune levels. A nurse will come to the house for the infusions for the first couple of weeks, and then I'll take over the care from there. He should have 2 subcutaneous needles inserted, and the infusion will more than likely last just an hour and a half. Our hope is that this treatment is the catalyst to keep him well, improves his wacky immune labs (and get his IgG to stay above 500!), and helps him continue to improve overall.